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Published: 2013-07-16 04:10:17 +0000 UTC; Views: 1585; Favourites: 25; Downloads: 0
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...And I'm certainly no stranger to the feeling.This piece is pretty atypical of me. Most of my watchers do know that Redbird is almost two entities in the same body: I use her as an equisona of sorts, to let out emotion when I need to... and she's my character as well, entirely separate from me. 90% of the things she does, or the drawings I place her in, have nothing to do with my real life. This is one of the other 10%- it instead, has nothing to do with her storyline, and everything to do with mine.
Some of my older watchers are aware of the cancer that put me on hiatus from deviantart in late 2010 for quite a long time. I was an ordinary teenage girl before that. But this cancer... not only was it extremely rare, it was very aggressive, and despite the fact I had been in and out of so many doctors, xrays, MRIs, and countless heavy drug dosages because of back pain, it still was not caught until I woke up suddenly one morning and couldn't even twinge a single muscle in my lower body.
I fell off the couch I had fallen asleep on (I had been stumbling around all night because the pain was so bad), and eventually was rushed to the hospital... then rushed into surgery, when they realized my spinal cord was being compressed into 1/4 of the space it should have been in.
The doctors told me I would never walk again. It may have been because I was on heavy doses of morphine at that point in time, but I thought they were idiots and told my mom they were wrong.
....And if it was the morphine that caused me to not lose hope, I have a lot to owe to morphine.
I went along with it all, spent six weeks in the hospital straight, not only undergoing extensive cancer treatment... chemotherapy and such, that made me lose my hair and the majority of the food I attempted to eat... but also extensive physical and occupational therapy. I couldn't even sit up after being forced to lie down and recovery from the surgery for so long. It was a tedious road of retraining my body- my heart, brain, and lungs- to work in an upright position again without me passing out, and even retraining my deteriorated core muscles to even hold me up. Many of my first therapy sessions were just with a therapist holding me up for five minutes at a time, because I couldn't even do it myself. You do not even understand how terrifying that is, until you're being suspended by another woman that's not much bigger than you are, knowing full well that you were completely helpless, because if she let go, even the muscles you COULD control weren't strong enough to hold you in a seated position.
They taught me how to live from a wheelchair in therapy. And every day, I would go back to my room after those eight hours of therapy, and sob to my mom. I didn't want to live in a wheelchair. I was a young teenager, and was completely incapable. People needed to help me to get out of bed, get dressed, and even use the bathroom. I was, and still am, a legal paraplegic. Very little hurt more than to know that.
Even beyond my mobility struggles, with every single dose of chemo I was given- and there were countless, easily over 200 by the end of my treatment- I lost more and more weight. At my lowest, I was 5'6" and 79 pounds- painfully thin, and unable to do anything about it. That certainly did not make my therapy any easier, let alone the fact I couldn't go in public without a mask on, because chemo killed all my blood cells. My platelets were gone, so I would get spontaneous nosebleeds that wouldn't stop for hours, my white blood cells were gone, so any germ that entered my body would make me sick.... and possibly deathly sick. Because of those low blood counts, I was near-death more than just at the beginning. Numerous dangerously high fevers also were part of my struggle.
And through all of this, even after I went home, I dropped out of school for an entire year to do therapy for five hours every day, plus a two hour drive. My therapist, a 200-pound man, would make me drag him on a rolling stool, behind my wheelchair, to make me stronger. Then we'd practice standing. And slowly but surely, I would get stronger. Just a little each day.
One day, he looked at me, while I was standing, with a death grip on a walker (I'd finally become strong enough that he didn't need to hold me up), and said, "try to take a step," and I thought he was crazy. I had miraculously found very limited movements back in my legs again, and was able to twitch them just enough to make them move a few inches if I laid in certain positions.... but walking? That was a different matter all in its own. But I tried. And I took a step. And then another. And then another. Until I had walked across the rehab gym. By the time I had sat down, every single person in the gym- each physical and occupational therapist, and every other patient as well- were staring at me in awe, some tearing up, or in the case of my occupational therapist, sobbing and basically running across the room to tackle me in a hug.
I had made a huge step, but it certainly wasn't anything practical. It took me about an entire five minutes to walk 30 feet, and I was exhausted afterwards. So all we did was practice. More and more, we worked, and I graduated to forearm crutches. That was a big step. I even was able to ditch my wheelchair entirely after several years of extensive work, and became very independent once again.
But I still struggle. I walk with no assistance at all, except for leg braces, when I'm at home, and in public, I will only use one crutch, because my balance is still poor. I fall quite often, but I've become used to it. Life with a disability is not easy, but it certainly builds strength of character. I often look back and wish I had my old life, but I'm reminded I would not be the same person without all of this.
Each day is a struggle. I'm in remission but still have back pain that I can't control, and any stupid movement I make, or any concussive injury to my back could completely paralyze me again. It's terrifying. But I can't think of that. I just need to look back on all the progress I've made, and keep stepping forward.
Maybe, with time, Redbird can make another big step, with all four feet over those crutches, and I can leave them in my past as well.
I can only hope and pray.
This was originally for a contest... ^rydi1689 's contest, here: waytogozippo.deviantart.com/jo... for Disability Awareness Day. I figured, why not, may as well give it a shot. But it became so much more than that to me. This piece truly signifies all I've gone through... all the things I don't often talk about. So even if I don't win at all, the time I spent on all the little details were worth it.
The colored bandanna/scarves are representative of the awareness ribbons for my problems:
Silver is teenage disabilities, Blue is paralysis, and yellow is bone cancer.
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Comments: 25
jamesjaystark [2013-08-12 03:06:15 +0000 UTC]
You are one of the strongest people I know, honey. I'm so honored to call you a friend. You give everybody hope. I'm so glad that you managed to kick cancer's ass. And I'm so happy that you fought to keep going and do things that doctors said you wouldn't be able to do. You're such an inspiration and I know that eventually, you'll get past the crutches, too, because you're so strong willed.
You can, and will, do this, girlie. I know you can. And I'll always be here by your side, no matter what.
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WayTOGOZippo In reply to jamesjaystark [2013-08-12 12:00:12 +0000 UTC]
Thanks. It really means a lot to have such great friends...
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LakshimiTheWolf [2013-07-19 20:26:04 +0000 UTC]
This is one of the most inspiring things I've read. You are a true warrior and I cannot imagine what that would have been like. You are an amazing person, and not to mention a very talented artist. You keep holding on to that awesome courage and strength and you could do anything. I hope you never have to face hardship like that again, I had no idea when I first watched you that you had gone through any of that, and now I am glad I know, not because I think you need pity to gain watchers, but because it is always eye opening to realize that someone who seems so (and I use this word loosely) normal, could have such a story. Thats all I have to say for now, keep on creating such excellent art and I hope you have a good day because if anyone deserves it, you do.
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WayTOGOZippo In reply to LakshimiTheWolf [2013-07-22 03:45:54 +0000 UTC]
Thank you so much. Comments like this seriously mean the world to me. To have the support and love from my watchers that I do, I'm an incredibly lucky person.
I'm by no means an amazing artist, and honestly, some days, I even hesitate to call myself an artist, because I only draw because I enjoy it. I try to better myself, sure, but I often lack the creativity and inspiration that true artists have. But whatever I do, I enjoy it, and that's all that matters, right?
It is crazy to know some of the backstories people carry, isn't it? And I love the anonymity of the internet, because I cannot be judged prematurely by my limp or my crutches (or, if the case were a few years ago, my lack of hair and wheelchair)... people are astounded when they learn that I'm not the person they imagined me to be, especially with my devID picture of me on horseback. It's a sad society when I see the looks I get in the store because of my limp, or the embarrassed parents dragging their kids away when they start to ask questions- real shame they think I'm offended by the innocence of such questions... but I AM disappointed in knowing that socially, my life became indefinitely harder as soon as I hit that wheelchair.
I was so shy before, so that is what killed me pre-cancer. Post-cancer I could care less what people think of me, so I'm open and welcoming now, and I have so many more friends that I KNOW are understanding when I'm slow or when I fall, because they befriended me AFTER it all happened, even though they usually knew me beforehand.... but going off to college, people might- or WILL- see me for that limp, that crutch, before anything else. Even I, pre-cancer, know I felt pity (and also uncomfortable) for that girl in the wheelchair, or the old lady with the walker, so I KNOW that's how it is. So making friends will be hard, because everyone can see me, unlike the internet... and finding someone to appreciate me romantically will be even more difficult. No one wants a gimpy girlfriend.
But that's alright. It's something I used to cry over, but I've become used to it by now. It doesn't really bother me, it's just another fact- like, the sky is blue, my cat is fluffy, I have awful balance and am dangerous in a chemistry lab, I'll have a hard time finding a boyfriend.
After writing all that, I feel like you might write me a pity response. Don't. I just started rambling, and I don't feel bad about my life, nor do I expect sympathy from you, I just sorta started talking the truth.
sorry for the massive comment back. My mind likes to go on somewhat related tangents.
Hopefully I'll see you again, commenting on some of my later art. I love talking to my watchers. It makes me so happy.
And thank you again for the awesome comment.
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LakshimiTheWolf In reply to WayTOGOZippo [2013-07-22 04:26:48 +0000 UTC]
I promise you right now that I will give you no pity, only understanding (to the best of my ability)
I have not had the easiest of lives and I -moderately- know what it is like to be pitied. I think you deserve no pity and only admiration. I think it is unfortunate that you have to deal with such things but as you said, you will have a hard time finding a boyfriend, but it isn't impossible. Maybe you will meet someone nice and it wont matter that you have limitations, it doesn't stop you from being the wonderful person that I can see you are. And anyway, back to me convincing you that you are an artist. Tchaikovsky's most famous piece of music was the dance of the sugar plum faeries. And you know what? He hated that piece. He said he would rather slit his own wrists than listen to it and that he felt it was rushed and not his best piece. yet it is his most famous piece. So maybe you art doesn't meet your own standards, but there will always be people who think otherwise. Personally, I think you have great potential. I can see you understand anatomy and shading, and not only that you know how to use colors to bring a bit of realism to the picture, such as using blue with your blacks, something that is quite often overlooked. I happen to think that if you really put your mind to it you could create a breathtaking masterpiece that would shock even you. When I look at you gallery I can see multiple themes and varying mediums. You don't always draw the same thing endlessly, you've done head shots, black and white, lots of different poses and angles, humans, my personal favorite is Redbird dropping the rose, I would never in a million years think to segment and stagger the horse heads in such a way to show that motion. And just because you don't post a picture every day or even every week doesn't mean a thing, quality over quantity, your art is great and I have always looked forward to your posts.
And back to the other thing, I agree, I think its terrible that parents don't allow their children to ask questions, because for a child it is strange to see someone in a wheelchair or using crutches and braces, they should be aloud to see that just because some people require the use of equipment, they are still people. I think that by dragging their kids away the parent is raising a child who is going to subconsciously think of people with handicaps as alien and strange rather than as a human being like them.
And no, thank YOU for being so open and allowing me to talk with you, and I hope you know that I will never forget you, I think you are an amazing person and perhaps even a role model of sorts. Plus I love to read so I smiled when I saw how long the post was!
<3
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WayTOGOZippo In reply to LakshimiTheWolf [2013-08-22 04:08:22 +0000 UTC]
Sorry it took me so long to answer this back. I've sort of been on hiatus from everything lately, just trying to restore my life to order before doing anything else.
Firstly, I can't believe that Redbird/Rose picture is your favorite. It's smudgy, I drew it while I was emotional, and in basically no time at all during study hall one day. I'm not terribly proud of it at all. But it's so unusual that you like it, and I really LOVE the fact that you have taken the time to actually go through my gallery in that great of detail.... That truly means so much to me, and you've gone above and beyond your duties as a watcher. <3 I post so often on here and wonder why it actually is that important to me. But things like that- knowing that someone appreciates your art that much to actually have looked that extensively through it- that's... incredible.
I love the fact you brought up Tchaikovsky. As a classical pianist, I'm all to familiar with many of his works, so reading that brought a smile to my face. I actually didn't know that he felt that way about Sugar Plum. I guess you've made your point (even if I do personally hate playing AND teaching the song... haha).
It's funny when I read that second to last paragraph. I was actually just out buying earrings the other day, and two little girls came up to me and kept asking me questions- what I was buying, why I was buying it, if I liked THEIR earrings... why my feet were "broken"... other than the fact that their parents probably should have honestly been watching them more carefully in such a big store, it was nice to see them asking questions (and asking if they could poke my legs and braces and stuff... that was cute.)
It's nice to know I made such an impact in your life. Making a little bit of a difference every day makes the world a better place.
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LakshimiTheWolf In reply to WayTOGOZippo [2013-08-28 15:19:23 +0000 UTC]
Haha no problem :3
Just keep being awesome and you'll always have me as a watcher
I think you are an amzing person and basically I have run out of things to say soo
Rock on..?
yeah.
Rock on!
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Ospreyghost13 [2013-07-19 16:27:05 +0000 UTC]
You already know how I feel about this because I remember talking to you before your big hiatus, and I know you were and still are an incredibly strong person. This picture is lovely and I'm glad you've been getting better and doing more art and growing and learning and living. You should know that I'm very proud of you and I love you.
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WayTOGOZippo In reply to Ospreyghost13 [2013-07-22 03:14:07 +0000 UTC]
Thank you so much. You were always the one person I remember talking to via note while I was in the hospital the entire time.
I'm so thankful for you and everything you do for me, and I love you very much too!
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rydi1689 [2013-07-16 16:43:18 +0000 UTC]
I don't even know what to say... Your strength and will is so inspiring ;___;
Are you cured of the cancer at least?
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WayTOGOZippo In reply to rydi1689 [2013-07-22 03:14:43 +0000 UTC]
Oh goodness, thank you so much.
I am in remission, so I'm cancer-free. Hopefully it stays that way forever.
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camiif3tt [2013-07-16 06:20:36 +0000 UTC]
It took me a few minutes to calm myself down, but I still can't quite figure out the words to say. I really wish I could just let you into my brain so you knew exactly how I felt about this.
But damn, I wish I could just hunt you down and hug you.
You're one of the strongest most amazing people I know and hearing about your struggles just breaks my heart. Seriously.
I wish I wasn't so bad with words. :c
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WayTOGOZippo In reply to camiif3tt [2013-07-22 03:16:15 +0000 UTC]
Oh goodness. You and Silv (~Ospreyghost13 ) have been my biggest supporters and friends since the beginning, so I'm so thankful to have both of you.
I try not to talk about it all, because I know it makes people uncomfortable, but I'm happy I can be inspiring to others, especially those going through similar things.
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IkuNeko5ever [2013-07-16 05:59:48 +0000 UTC]
I don't know if this was your intent put this has really touched me and I am now crying. I haven't heard of many teenagers with cancer, though both of my grandfathers(one on my mothe'rs side, one on my father's side) and my teacher recently fought cancer. I have watched all them struggle through the aftereffects of beating cancer, though nothing nearly as difficult as what you went through.
Geez, I feel so horrible because even my little heart defect doesn't compare to what you went through with chemo and all those struggles that follow the rehabilitation after cancer
I really love you Zippo, always have since I first met you on deviantART. You're truly amazing I especially love pictures with meanings such as this one has
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WayTOGOZippo In reply to IkuNeko5ever [2013-07-22 03:21:48 +0000 UTC]
Thank you so much for the amazing comment, it truly means so much, and I'm so thankful to have amazing watchers and friends supporting me like you do.
Like I said, I try not to talk about it much, because it makes people uncomfortable, but I'm so glad when I become an inspiration, and I really just hope to spur people to do good in the world. If I can touch one person at a time, nothing bad can come out of it at all... I just hope for the extreme other end- much GOOD will come out of it. More good than I can do just by myself.
Cancer sucks, no matter who you are, or when you first learned you had it, but it truly gives you a different view on life. It changes you dramatically, especially when you experience it firsthand. My paternal grandma died of recurring cancer that came back again after several years of remission, that spread and eventually killed her.... and my maternal grandpa, who was one of my best friends, died of it just over a year before I came down with my own... but it's totally different to have it yourself. You never truly understand how brave those people are, facing it, especially when they're not always in the best of shape health-wise to begin with.... I was a very healthy teenager in the prime of my life, and it still destroyed me.
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IkuNeko5ever In reply to WayTOGOZippo [2013-07-22 05:29:08 +0000 UTC]
Wow. My story is completely different than yours. I started out weak and gained health(as much health as someone with my defect can have) throughout my life.
You're truly amazing Zippo. I really love you.
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IthilFaer [2013-07-16 05:28:17 +0000 UTC]
I...I'm looking at this, and breaking out in tears. The picture looked so simple when I opened it...
I've read through the entire description, and I had no idea that any of that ever happened to you.
You're so cheerful honestly. I don't know how you do it, when all this has happened to you.
You're an amazing person, and so strong for having gone through all of that. I can't even begin to imagine how difficult that was, knowing that any day you might die just because your immune system is basically non-existent, so getting even a tiny prick in your finger might kill you. How terrifying that must have been! And then the story of your recovery...wow. Can I just say that such persistence, perhaps even stubbornness at times to get better, is just an amazing thing to see in a teenage individual of this day and age?
Your story amazes me, and I just can't believe...I can't believe that even after all that, you're still so cheerful with people you meet on here. You're such a strong person for having gone through all of that, and then being willing to make something like this to share your story...
Alright, I'll stop blabbering now...I'm just about speechless. Wow. Just wow.
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WayTOGOZippo In reply to IthilFaer [2013-07-22 03:33:41 +0000 UTC]
Thank you so much for the amazing comment. Sorry it took me so long to get back to you, I just couldn't manage reading through all of the comments without wanting to cry, let alone answer them. It was kind of overwhelming.
There is no use in pitying myself, slipping into a deep pit of woe (though I have on more than one occasion, especially during those first weeks of therapy), when I could be doing good in the world. I'm so glad that this piece in particular touched you, because it's one more tiny ounce of impact I've made.
I'm so appreciative of all the support and love I get from all of my watchers, and every comment from all of you on any piece, and every piece of giftart, warms my heart. You really all mean so much to me, so comments like yours mean so much.
Cancer and paralysis and everything that goes with it sucks, I'll be honest with that. But it made me realize that they're so much more in the world than the things that my friends and I used to worry about before I got sick. You know, things like whether or not my Spanish teacher liked me, and boys, and friend drama...
I graduated high school on time, something that no one thought I would be able to do, so now I hope I can put everything behind me and just use the experience I've gone through, and the things I've learned (though I probably learned the much earlier than any teenager should ever have to) to do better.
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DarkEternalShadows [2013-07-16 04:22:01 +0000 UTC]
I can't express how much I love this picture. I am in a wheelchair (paralyzed from the waist down) from a car wreck when I was 17 in 2009. I was a horse rider and owned a horse, but sadly I had to sell him when I could no longer ride him. This picture makes me smile so big, and thank you so much for sharing it. It's absolutely beautiful.
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WayTOGOZippo In reply to DarkEternalShadows [2013-07-16 04:26:21 +0000 UTC]
Thank you so much for the amazing comment.
I hate to see another equestrian hindered by paralysis, but I'm so happy that my drawing made you smile. It really means a lot, and I'm glad that even just one person appreciated it.
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DarkEternalShadows In reply to WayTOGOZippo [2013-07-16 04:35:46 +0000 UTC]
You're very welcome!
Yes, I agree, it's a sad thing. My horse was my best friend and it was difficult to make the choice, but I couldn't let him stay here and not be rode anymore. I do still get to see him, as one of our neighbors took him, but yes, you're drawing made me feel so happy that I wasn't alone when it comes to things like these.
I absolutely appreciated it. It's absolutely wonderful!
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WayTOGOZippo In reply to DarkEternalShadows [2013-07-22 03:25:31 +0000 UTC]
Thank you again.
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